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TalkT1 / Brrr, C2C in a Day and “Talking about Diabetes”.

Been a long time – missed you very sorry.

Its surprised me over the last few months how many people have come up to me and said hey I love your blog. I was in danger of being so busy as to not document some of the boundaries I’m pushing.

TalkT1

First bit of news is that I’m planning on starting up a type one podcast – not sure how this will go but going to give it a year. Will kick off this summer – watch out for TalkT1

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Its cold out there..

yep this is the big one for me. After what seemed years of frustration in taking on some epic ultra runs and getting cold – with one or two scenarios pretty serious. I’ve at last got some people listening and responding with a little more than put another jumper on. Initially finger pointing was at having low blood sugars during events – but I’d managed a few without and the symptoms still persisted.

I’ve been fortunate to connect up with Andy Petitt of Airedale Hospital and Barney Wainwright and his team at Leeds Uni. So far I’ve spent a couple of days with them including 4 hrs running on a treadmill in a fridge. Alarmingly my core temperature dropped to 32 degrees (without me noticing) – as to why? that is a bit of unknown but at least there is a better understand of what is happening. I’m back in on the 22nd March – for the moment I’m not taking part in long events and avoiding long days out on the hill, until its resolved. It almost doesn’t bare thinking about if it all went wrong. Suffice I’m happy its going the right direction, the conclusion may not be pleasant answer but at least there is a desire to find out what is going wrong.

Photo taken by Joe Faulkner

Photo taken by Joe Faulkner

C2C in a Day

The next exciting thing is the C2C in a Day sportive – its an event I run each year and this year I’m likely to have well over 1000 riders on this event, and at least 20 of them will be type 1 diabetics. I really didn’t want this to be a fundraising exercise – there is a danger with being a T1 that you only run or cycling to raise money. I really wanted the primary motivation for these guys to take on this event to show the world that they can cycle 150 miles. They come from a broad spectrum of backgrounds and many are having to up their game to get to the start line of this amazing journey.

11221588_10152876782861695_3835907370844455004_nTalk about Diabetes

On Saturday I was down in London at a new conference – it had 6 inspirational speakers who have Type 1 a real diversity of experience. It was well worth the trip to meet new people and to hear these tales – I was struck by a Lis Warren who has had T1 for 50 years, an amazing advocate and works hard volunteering for various groups. Some 40% of Diabetics (or people with diabetes if that offends), have an eating disorder. Quite a startly statistic – but quantified by diabetics being obsessed with food – by implication all T1’s are, or should be, obsessed with what they are eating so should it be nearer 100%

http://diabetestimes.co.uk/event-promotes-type-1-diabetes/

http://diabetestimes.co.uk/event-promotes-type-1-diabetes/

Photo Diabetes Times http://diabetestimes.co.uk/event-promotes-type-1-diabetes/

Other speakers included Joe Eldridge a ex pro cyclist with Team Novo Nordisk – whose story of bringing a T1 cycling team to the pro circuit and winning the RAAM is a real eyeopener. Laura Cleverly (@ninjadiabetic) wow what a humbling story, from a young age Laura kicked back diabetes treatment and care with some devistating circumstances – nearly going blind – her story of treatment in the NHS and what pulled her around left most in the room in silence.

Weston Nordgren one of the people behind nightscout – an interesting project of driving medical technology for diabetes. More on this in another blog – a real challenge for the tech companies who don’t seem to be keeping up.

Jamie Reed was one of my favorites of the afternoon, perhaps because I could relate to his story of being recently diagnosed and in a relatively intense job. Jamie arguably at a different level with being an MP for Copeland in Cumbria. Hopefully he will take up my offer of going for a run. This leaves Anne Cooper a Type 1 and health care professional who peers over both side of the fence – a tremendous story with plenty of candour of what it was like back in 1979.

Lastly Richard Lane, previously president of Diabetes UK and the 1st in the country to have an islet transfer and to be a type 1 not requiring insulin for a year – various complications meant that he is back on a pump. I think all in the room had a lump in their throat when a very young girl with type 1 asked what it was like not to have to take insulin.

As you can tell some inspirational stories. I do hope they run another one – as I understand the talks were recorded and should be available online.

Back soon..

James

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